Introduction
Traveling with a chronic illness can be hard, especially when faced with unexpected challenges and a new diagnosis. As someone living with lupus and multifocal avascular necrosis (osteonecrosis), Sam shares the complexities and hurdles that come with planning and embarking on a summer trip.
Continue reading to learn more about her story and advice for chronic illness warriors traveling this summer.
A Challenging Diagnosis
Living with lupus has always been a challenge, but recently, it has escalated with the addition of a new diagnosis: multifocal avascular necrosis, also known as osteonecrosis. After receiving the official diagnosis in March and learning about the need for a series of surgeries, I felt devastated. This news derailed many of my summer plans. However, before my first surgery, I was able to travel, catch up with friends, and even attend a concert. These experiences helped fill my emotional cup before I faced the arduous process of surgeries ahead.
The Impact of Unexpected Events
As much as I try to prepare for the unexpected, life has a way of throwing curveballs. Last summer, I took a cruise to the Bahamas, where I encountered a significant setback. While disembarking from a golf cart at one of the ports, I fell. Falling is a frequent occurrence for those with osteonecrosis, yet each time, the recovery is difficult. The fall caused extensive damage, forcing me to retreat to my cabin for the day to ice and rest.
Despite being cut, bruised, and in increased pain, I refused to let the situation ruin my vacation. I managed my symptoms as best as I could and focused on enjoying the trip. This experience served as a poignant reminder: while we cannot control everything that happens to us, we can control our responses and how we allow events to affect us.
Tips for Traveling with Chronic Illness
For fellow chronic illness warriors planning their summer travels, here are some tips to help you navigate your journey:
1. Plan Ahead
Research your destinations, look up local restaurants, and identify nearby medical facilities. Prepare for different climate conditions and ensure you fill all medications for at least one extra week in case of emergencies.
2. Pack Smart
When traveling while sick, you’ll need to bring extra items. Don’t forget comfort items like heating pads or ice packs. Check airline restrictions for medications and medical equipment.
3. Stay Hydrated and Keep Snacks Handy
It's essential to stay hydrated, especially when on the go. Make sure to get your daily water intake and adjust for the climate. If you’re diabetic or struggle with hypoglycemia, keep snacks within reach.
4. Take Breaks and Use Mobility Aids
Listen to your body and take breaks as needed. Don't hesitate to use mobility aids to help you navigate your travel.
5. Advocate for Yourself
In unfamiliar places, it can be challenging to ask for help, but it's necessary. Don’t hesitate to seek assistance when you need it—there's no shame in advocating for yourself.
6. Have an Emergency Plan
Always have an emergency plan in place. This could include travel insurance to cover any medical needs during longer trips.
By being proactive and prepared, you can enjoy your travels while managing your chronic illness. Remember, the journey may have its challenges, but your mindset and response can make all the difference.
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