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In honor of #RareDiseaseDay, we wanted to share Mary's perspective of what it's like living with Cystic Fibrosis, a rare genetic condition with no cure.
- March 02, 2021
- 5 min read
- 1 Comment
From undergoing chemo to getting her eggs frozen, learn how Tamsyn navigated her cancer journey and learned to love her new scars.
- February 22, 2021
- 4 min read
Read Georgina's inspiring story of living with Sickle Cell Disease and advocating for awareness.
- December 28, 2020
- 5 min read
Cheyanne shares how living with medical devices such as her wheelchair, feeding tubes, and IV lines has shaped her identity.
- October 26, 2020
- 4 min read
- 2 Comments
Tiffany documents her journey of coping with her mom having breast cancer, from the day before she was diagnosed to the last day of her chemo.
- October 16, 2020
- 6 min read
Navigating life as a full-time employee and patient is no easy feat. Christina shares how she manages working while also being chronically ill.
- September 29, 2020
- 4 min read
- 2 Comments
Living with a chronic illness often means that you have to adapt your lifestyle around your health. There are plenty of things you learn along the way, from lessons about self-worth and acceptance to the importance of advocating for yourself and others.
- September 08, 2020
- 3 min read
- 1 Comment
Living with constant pain, not being able to eat, frequent hospitalizations, and relying on medical devices took a toll on Rachel's life. Although she realizes her life and nutrition may look a lot different than others, she accepts it as her normal.
- August 31, 2020
- 7 min read
- 3 Comments
Prepare for any situation with these chronic illness bag essentials. From medications to comfort items, discover what to keep in your backpack to manage health needs on the go.
- August 25, 2020
- 4 min read
Since its inception, the Internet has played a role in healthcare. But what started out as primarily a source of information has now evolved into a much more interactive experience. Social media, cancer communities, and online support networks are revolutionizing the patient experience.
- August 13, 2020
- 6 min read
- 1 Comment
Throughout her journey with Lyme Disease, Haley has had a complicated relationship with her PICC lines. From multiple infections and trips to the ER to weird looks and comments — Haley had plenty of reasons to hate her PICC line. But she decided to view it as a "badge of honor" rather than something "to be embarrassed about" and wear it with pride.
- August 10, 2020
- 5 min read
- 3 Comments
"When I was diagnosed with breast cancer, it drastically changed my wardrobe." Here is Christie's ultimate wardrobe guide for common breast cancer treatments, surgeries and procedures.
- August 03, 2020
- 5 min read
- 7 Comments
Once we started seeing stories that cancer treatments were being postponed due to COVID, I completely lost my mind. I was petrified I would get a call one day telling me that my double mastectomy could not proceed as planned. And sure enough, one day, my phone rang, and it confirmed my fears.
- July 31, 2020
- 4 min read
- 3 Comments
"Thomas Rimmer shares his journey of battling cancer, from the discovery of his diagnosis to undergoing chemotherapy and treatment.
- July 10, 2020
- 3 min read
- 1 Comment
Discover Rachel's courageous journey through chronic illness, from childhood diagnosis to becoming a patient advocate and co-founder of #WeAreTheVulnerable.
- June 26, 2020
- 8 min read
- 2 Comments
"For many months they couldn’t figure out what was wrong with me. I would vomit every time I ate. I couldn’t hold anything down, which led to malnutrition, fatigue, dizziness, and passing out." Read Kristy's inspiring journey!
- June 18, 2020
- 8 min read
- 2 Comments
"The typical POTS at-home treatments: compression socks, salt, electrolytes, small meals, and working out was not helping me." Read Ash's story of how they battle dysautonomia every day and chooses to be positive and grateful.
- June 10, 2020
- 6 min read
Diagnosed with acute lymphoblastic leukemia at the age of 10, singer and songwriter Ava shares her story, treatment, and medication. ALL occurs when a bone marrow cell develops errors in its DNA and is the most common childhood cancer.
- June 04, 2020
- 4 min read
- 1 Comment
"I started the treatment with peripheral IVs but with EDS, my veins couldn’t hold up to the constant poking" Read Madelieline's journey through EDS symptoms, diagnosis, and treatment.
- May 28, 2020
- 5 min read
- 2 Comments
Missy talks about her Lymphoma diagnosis, and treatment that followed. From chemotherapy to a bone marrow transplant, she expresses her courageous journey.
- May 22, 2020
- 3 min read