Meet Veronica
Veronica is a Care+Wear community member and chronic illness warrior. Living with a chronic illness has transformed Veronica's life in countless ways. Navigating daily challenges with an ileostomy, POTS, chronic migraines, and a PICC line, she remains resilient and determined. This summer, Veronica challenged herself with a trip to Cedar Point in Ohio and a visit to the beach, proving that with the right preparation, enjoyable travel is possible.
Continue reading to learn more about how Veronica managed her trip and discover her tips for thriving on the go.
Traveling with a Chronic Illness
Living with a chronic illness has changed my life in countless ways. I have an ileostomy, POTS (Postural Orthostatic Tachycardia Syndrome), chronic migraines, and dumping syndrome from my ostomy. I’m also chronically dehydrated, have ADHD, and experience brain fog. These conditions have profoundly impacted my daily life, especially now that I have a tunnel PICC line. While the PICC line has been lifesaving, it comes with its own set of challenges: I can't go swimming, take a normal shower, or get my PICC line wet at all. Despite these limitations, I am incredibly grateful for my PICC line because it keeps me hydrated and healthy every day.
This summer, I decided to challenge myself and went on a trip to Cedar Point in Ohio and to the beach. Traveling with chronic illnesses can be tough, but with the right preparation, it's absolutely possible to have an enjoyable and fulfilling experience. Here's how I managed my trip and some tips for my fellow chronic illness warriors.
Preparing for the Trip
Preparation is key when traveling with chronic illnesses. Knowing that my body requires constant care, I made sure to pack all my essential supplies. This included extra ostomy supplies in case of a bag leak and my IV fluids to stay hydrated. I started my fluids before we entered the park, continued them throughout the day, and did another session at night. This routine was crucial in preventing a hospital visit.
The Importance of a Support System
Having a supportive travel companion can make a world of difference. My brother was a great help, especially when I needed to rest or manage my IV fluids. Don't hesitate to ask for help when you need it; traveling with a chronic illness is a team effort.
Embracing the Experience
Despite the physical toll, I had an amazing time at Cedar Point and the beach. Riding roller coasters and relaxing by the ocean were worth the extra effort. My IV fluids were a lifesaver, allowing me to enjoy these activities without severe dehydration.
Tips for Fellow Warriors
To my fellow chronically ill warriors, I want to say: Enjoy your trips and don’t let your condition hold you back. Just because you have a PICC line, an ostomy, or any other medical device doesn't mean you can't have fun. We deserve to enjoy life and have adventures, just like everyone else. Here are some tips to make your trips more manageable:
- Prepare Thoroughly: Always bring more supplies than you think you'll need. This includes medical supplies, medications, and comfort items.
- Stay Hydrated: If you have a condition like POTS or dumping syndrome, make hydration a priority. Carry water and, if needed, your IV fluids.
- Take Breaks: Listen to your body and rest when you need to. Don't push yourself too hard.
- Plan for the Unexpected: Have a plan for emergencies, including knowing the locations of nearby hospitals and carrying important medical information.
- Enjoy Without Guilt: Don't let anyone make you feel bad for having fun. You deserve to enjoy life, and having a chronic illness doesn't change that.
Traveling with chronic illnesses requires extra effort and planning, but the rewards of experiencing new places and creating memories make it all worthwhile. Remember, you are resilient and capable, and with the right preparation, you can conquer any adventure.
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