Navigating healthcare as a rare disease patient can be a difficult experience filled with uncertainty and frustration. However, Tayler's journey has taught her that building a strong, trusting relationship with her healthcare team is essential for not only healing but also for maintaining her mental and emotional well-being.
Kimmy, a chronic illness warrior and advocate, shares how this nurse's kindness and compassion helped her navigate a difficult period, highlighting the importance of the healthcare workers who go above and beyond to care for their patients.
Simia Rumph is a brave breast cancer survivor who faced 16 rounds of chemotherapy, a double mastectomy, and radiation with incredible courage and determination. Simia's story is a heartfelt reminder of the strength found in vulnerability and the importance of support during tough times.
Kate has been living with metastatic breast cancer for nearly 12 years, undergoing over 180 treatments. She shares her experience of navigating life with MBC, finding peace in the chaos, and appreciating the beauty in everyday moments.
Catrina Marcell is a survivor of Triple Negative Breast Cancer, diagnosed in June 2021, and carries the BRCA1 positive gene mutation. Dedicated to empowering women, she shares her journey along with valuable tips and resources to help them advocate for themselves.
Caregiving is an act of love, sacrifice, and deep compassion. In Erica's life, her aunt Joanne has been that foundation, offering a kind of unwavering support that words alone can't fully express. Explore the impact Joanne has made on Erica's health journey.
In this heartfelt blog, Izzy shares her personal journey of living with chronic illness and the profound impact her mother, as her caregiver, has had on her life.
Navigating life with a chronic illness is incredibly challenging, but having the support of a dedicated caregiver can make all the difference. In this blog, chronic illness warrior Aleeta reflects on her journey with a rare disease and how her mother’s unwavering support has guided her path toward healing and strength.
Claire and Lulu are a disabled couple who have learned to navigate the unique challenges of daily life together. In this blog, they share their experiences of balancing their needs, the crucial role caregivers play in their lives, and the lessons they’ve learned about seeking help and supporting each other through difficult times.
Kimmy, a chronic illness warrior and advocate, has found incredible support from her mom. Throughout her health struggles, her mom’s constant presence and love have been a great source of comfort and encouragement. In this blog, Kimmy talks about how her mother has been a guiding light during tough times and how grateful she is for her mom’s role as both a loving parent and a dedicated caregiver.
Summer, once Nicole's favorite season, now poses significant challenges due to her heat intolerance and temperature instability. Yet, Nicole has found ways to adapt and still enjoy the season. Explore her strategies and experiences.
Traveling has always been a passion for CoraBeth, but managing chronic illness added new challenges. Through resilience and adaptability, she discovered that with thoughtful planning and a positive mindset, travel can still be rewarding.
Living with a chronic illness has transformed Veronica's life in countless ways. Navigating daily challenges with an ileostomy, POTS, chronic migraines, and a PICC line, she remains resilient and determined.
Traveling with a chronic illness can be hard, especially when faced with unexpected challenges and a new diagnosis. As someone living with lupus and multifocal avascular necrosis (osteonecrosis), Sam shares the complexities and hurdles that come with planning and embarking on a summer trip.
Caitlin's journey with chronic illness began 11 years ago at the age of 14, and she has since become well-versed in managing the complexities that come with it. In this blog post, she shares her personal story and offers practical tips for fellow chronic illness warriors to help them navigate their own journeys.
Madelyn (@chronicallymadelyn) is a disability and chronic illness advocate. Her goal is to inform and educate about disabilities and chronic illnesses while also helping others feel less alone in their journey!
Marissa shares her journey with EDS, and how she overcame obstacles like chronic pain during summer activities.
Amanda Kelly shares her journey battling Non-Hodgkin's Lymphoma and the challenges she faced with a PICC Line. From the initial shock of diagnosis to enduring intensive chemotherapy, Amanda recounts her experiences with resilience and determination.
Every parent’s biggest fear is to hear their child has been diagnosed with cancer. From one caregiver to another, learn how to cope with the news and provide the best possible care to your child.
Discover helpful tools and tips to manage nutrition during chemotherapy and reduce nausea, provided by Margot Malin, Founder & CEO of Lots To Live For, Inc.
